Cranio clinic-July 18th

Every year we have to take Shay to see her cranio facial doctors at Primary Children's Hospital. She has to her see her plastic surgeon, orthodontist, ear-nose-and throat doc, a speech therapist, a social worker, and the cleft nurse. It took what seemed like FOREVER this year........3 1/2 hours to get to see everyone.

We were able to meet some amazing little kids and their parents while we were waiting! These little, special spirits always amaze me!

Shay was really cooperative at first, she even opened her mouth and didn't cry (for the 1st time EVER) when Dr. Yamishiro looked at her, but then she started getting tired and hungry. She got a good report from everyone and gets to wait another year or so until they do the bone graft on her. They will graft bone from her hip and put it in the roof of her mouth and her gum line. It is supposed to be a really hard (and painful) surgery. I'm hoping to put it off for as long as possible since she is so delayed developmentally and won't understand not to put her hands in her mouth. Nor will she understand that we are doing it for her own good.

She is sure a brave little girl and I love her so much. After we finished with all of the appointments, we took her out to the wishing pond and let her throw in some money and play in the water. Then we went and ate at the cafeteria where she got to carry her own tray and choose what she wanted to eat. P.C.M.C has the best food ever in their cafeteria!